Apert's is so rare! The student who has it has only met four other people with it, some of them children.
Now there is a person I wish I had been more supportive of.
My, do I understand that!
When my children were small and we lived way out in the country in Virginia, our next door neighbors had a child with a condition in which the bones are incredibly brittle. I met the father, but he discouraged me from ever visiting the home, and especially from bringing my boys with me, for fear that we might accidentally hurt his little girl. I'm not sure I ever even met his wife and I really wish I'd found a way to offer her support, even if it wasn't by visiting. We could have spoken on the phone, or even found a way to let the children interact while also keeping them physically separate. By the time Ian was five, he could have read stories to the girl, and he would have loved to do so.
no subject
Now there is a person I wish I had been more supportive of.
My, do I understand that!
When my children were small and we lived way out in the country in Virginia, our next door neighbors had a child with a condition in which the bones are incredibly brittle. I met the father, but he discouraged me from ever visiting the home, and especially from bringing my boys with me, for fear that we might accidentally hurt his little girl. I'm not sure I ever even met his wife and I really wish I'd found a way to offer her support, even if it wasn't by visiting. We could have spoken on the phone, or even found a way to let the children interact while also keeping them physically separate. By the time Ian was five, he could have read stories to the girl, and he would have loved to do so.